It is 5 am and i have been sleepless since 2. Ilm not sure if my body is reacting to some as yet unrecognized problem or if i have energy that i havenlt experienced in a long time.
The very good news is that my red blood cell count has been rising because of the darbepoetin alfa shots. The count is not yet up to the acceotable minimuim llevel and it may never get there. but it is high enough that i no longer have to worry about exhaurion or frequent blood transfusion. Joy abounds. I should be able to return to some semblence of normality by the beginning of the month.
I still need supplemental oxygen, but only for excercize or long walks.
BTW, ilve lost 30 pounds -- a gift of my illnessses. The weight came off without effort. and i feekgood!
My BMI is now "normal"
I hope to post regularly about subjects of greater interest to me than my personal healsth. Also i wull resume reading my friend's journal entriees, whiich i haven't done since early Jamuary.
May 18th was the first anniversary of Dianne's death. It has been an easy year. God Damn autism! God bless autism!
Peace, loving kindness, and joy to all.
The very good news is that my red blood cell count has been rising because of the darbepoetin alfa shots. The count is not yet up to the acceotable minimuim llevel and it may never get there. but it is high enough that i no longer have to worry about exhaurion or frequent blood transfusion. Joy abounds. I should be able to return to some semblence of normality by the beginning of the month.
I still need supplemental oxygen, but only for excercize or long walks.
BTW, ilve lost 30 pounds -- a gift of my illnessses. The weight came off without effort. and i feekgood!
My BMI is now "normal"
I hope to post regularly about subjects of greater interest to me than my personal healsth. Also i wull resume reading my friend's journal entriees, whiich i haven't done since early Jamuary.
May 18th was the first anniversary of Dianne's death. It has been an easy year. God Damn autism! God bless autism!
Peace, loving kindness, and joy to all.
Comments
I'm glad you're feeling better!
As you begin to read your LJ friendlist you may find a substantial absence of entries. The Proprietors demanded acceptance of Terms of Service, in Russian and subject to alteration at any time, that made many/most Anglos on LJ Suspicious. There's been a mass migration to Dreamwidth. This entry on DW may help you find people you're looking for.
An easy year is good. Mourning is strange and individual, and I wonder from afar how much you might have worked through before Dianne died.
Edited at 2017-05-26 03:16 pm (UTC)
Since the internet remains a source of befuddleement to me, i m much less concerned then i probably ough to be with issues of privacy, etc., and will likely find no reason to grieve live journal.
The (philosophical part of) Taoism takes the attitude toward grief is that it should be brief and quiet. It is part of the general acceptance of life as it is that pervades the wisdom traditions.
<3!
:)
Edited at 2017-05-28 03:13 am (UTC)
Namaste.