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Update Update !!

It is 5 am and i have been sleepless since 2.  Ilm not sure if my body is reacting to some as yet unrecognized problem or if i have energy that i havenlt experienced in a long time.

The very good news is that my red blood cell count has been rising because of the darbepoetin alfa shots.  The count is not yet up to the acceotable minimuim llevel and it may never get there. but it is high enough that i no longer have to worry about exhaurion or frequent blood transfusion.  Joy abounds.  I should be able to return to some semblence of normality by the beginning of the month.

I still need supplemental oxygen, but only for excercize or long walks.

BTW, ilve lost 30 pounds -- a gift of my illnessses.  The weight came off without effort. and i feekgood!
My BMI is now "normal"

I hope to post regularly about subjects of greater interest to me than my personal healsth.  Also i wull resume reading my friend's journal entriees, whiich i haven't done since early Jamuary.

May 18th was the first anniversary of Dianne's death.  It has been an easy year.  God Damn autism!  God bless autism!

Peace, loving kindness, and joy to all.


( 14 comments — Leave a comment )
May. 26th, 2017 03:16 pm (UTC)

I'm glad you're feeling better!

As you begin to read your LJ friendlist you may find a substantial absence of entries. The Proprietors demanded acceptance of Terms of Service, in Russian and subject to alteration at any time, that made many/most Anglos on LJ Suspicious. There's been a mass migration to Dreamwidth. This entry on DW may help you find people you're looking for.

An easy year is good. Mourning is strange and individual, and I wonder from afar how much you might have worked through before Dianne died.

Edited at 2017-05-26 03:16 pm (UTC)
May. 28th, 2017 03:00 am (UTC)
Thank you, my friend.

Since the internet remains a source of befuddleement to me, i m much less concerned then i probably ough to be with issues of privacy, etc., and will likely find no reason to grieve live journal.

The (philosophical part of) Taoism takes the attitude toward grief is that it should be brief and quiet. It is part of the general acceptance of life as it is that pervades the wisdom traditions.

May. 26th, 2017 03:34 pm (UTC)
What great news ! I'm so happy your health is on the rise. Time fly's....I can't believe it's over a year since Dianne's death.
May. 28th, 2017 03:02 am (UTC)
Thank you, my friend
May. 26th, 2017 07:00 pm (UTC)
So good (and so relieved!) to hear from you again! I've been thinking about you lately and wondering how you were doing; doesn't seem a year already since your wife's death. I hope your health continues to improve and you can get back to the wonderful, thought-provoking observations that are always so interesting to read.
May. 28th, 2017 03:05 am (UTC)
Thank you, my friend.
May. 26th, 2017 07:43 pm (UTC)
So good to hear from you, my friend. May the improvements continue and may we once again enjoy your presence here.
May. 28th, 2017 03:07 am (UTC)
Thank you. Donna.
May. 27th, 2017 10:39 am (UTC)
So glad to hear you have energy!
May. 28th, 2017 03:08 am (UTC)
Thank you, Judith.
May. 27th, 2017 06:32 pm (UTC)
Blessings to you. I haven't been posting but am happy to hear of your returned energy. Peace, loving kindness, and joy to you too!
May. 28th, 2017 03:10 am (UTC)
Thank you, Cathy

Edited at 2017-05-28 03:13 am (UTC)
May. 28th, 2017 02:17 am (UTC)
It is goood, and feeds the soul to hear of you, and from you, sir.
May. 28th, 2017 03:15 am (UTC)
Thank you, my friend. Namaste.
( 14 comments — Leave a comment )



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