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Update Update -- Good Night

We are still fighting a battle with the oxygen.  While hospital oxygen systems can pump out 20 litres per whatever, home oxygen supplies can only deliver 10 litres and are extremely unreliable above 5 or 6.  Diannw has been doing well on 4 or 5 during the day and 6 at night.  This evening her oxygen saturation  level (OSL) dropped into the low 70s and we had to increase the input to 6.  Now she is  breathing normallly and getting plenty of oxygen but i will need to keep checking through the night.

Her birthdaty came and went, like most days, quietly and uneventfully with gifts of fruit and candy from younger daughter and a visit from older daughter.

Please keep us in your thoughts and prayers.


( 15 comments — Leave a comment )
Jul. 11th, 2015 12:59 pm (UTC)
OH my goodness. Can you for good measure just always put it on 6 for the night? I don't understand why the machine is unreliable above 5 or 6. Do you perhaps have a defective machine? Just asking.

You must be dog tired after getting up during the night to check the machine. Can you nap during the day?
Jul. 11th, 2015 03:38 pm (UTC)
Ever since i can remember, sleep has come to me in short bursts. After sleep apnea was diagnosed and i was put on a CPAP, the periods of sleep got longer, but never more than two or three hours. So it is "natural" for me to awaken two or more times before morning.

All i know about medical devices is what i am told. I gather that extremely high inputs of pure oxygen can be very dangerous and should only be administered under direct professional supervision. Any system small enough to be portable will probably have somewhat limited capacity.

IMPPO, Dianne should probably be in hospice or assisted living, but she will not tolerate this and i stand by her. I also spent a brief period of my youth as a social worker and have some insight into what the elderly have to go through when they can no longer live on their own. We have done alright for 10+ years.
Jul. 11th, 2015 06:09 pm (UTC)
I applaud your gallantry and your expertise.
Jul. 12th, 2015 05:39 am (UTC)
Jul. 11th, 2015 09:48 pm (UTC)
You and me both, with respects to medical equipment. I only know what they tell me.

You do know you can get hospice care at home right? Perhaps they can give you a break once in a while. I only know this because I insure the hospice facility here.
Jul. 12th, 2015 05:35 am (UTC)
Yes, thank you.
Jul. 11th, 2015 05:44 pm (UTC)
You guys are doing such a good job!! I can imagine how hard it is on both of you, but I do understand that Dianne still prefers this situation over hospice or assisted living. And what would you do all by yourself in your home?
Sending love, blessings and prayers
Jul. 12th, 2015 05:36 am (UTC)
Thank you, Mia.
Jul. 11th, 2015 06:06 pm (UTC)
Thinking about you, holding you in prayer.
Jul. 12th, 2015 05:37 am (UTC)
Thank you.
Jul. 12th, 2015 06:41 am (UTC)
Will do.
Jul. 12th, 2015 10:49 pm (UTC)
Thank you,
Jul. 12th, 2015 11:16 am (UTC)
Praying for Dianne and you. I am so glad you have each other. I hope you can rest along the way. Peace and strength be with you.
Jul. 12th, 2015 10:48 pm (UTC)
Thank you, Jeff.
Jul. 13th, 2015 11:35 am (UTC)
Thinking of y'all this morning.
( 15 comments — Leave a comment )



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